Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy

Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy

Abstract Background Clinical care guidelines are typically developed by clinicians and researchers. Including patient and caregiver voices in guideline development may help create guidelines that are more useful for patients and consequently improve their guideline adherence. Although there is subst...

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Bibliographic Details
Main Authors: Brian Denger, Kathi Kinnett, Ann Martin, Sean Grant, Courtney Armstrong, Dmitry Khodyakov
Format: Article
Language:English
Published: BMC 2019-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Duchenne muscular dystrophy
ExpertLens
Guideline adherence
Modified-Delphi
Patient engagement
Online Access:http://link.springer.com/article/10.1186/s13023-019-1173-7

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http://link.springer.com/article/10.1186/s13023-019-1173-7

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