Sociodemographic, Clinical, and Psychosocial Characteristics of People with Hemophilia in Portugal: Findings from the First National Survey

Sociodemographic, Clinical, and Psychosocial Characteristics of People with Hemophilia in Portugal: Findings from the First National Survey

Hemophilia is a rare genetic bleeding disorder associated with pain, impaired functionality, and decreased quality of life (QoL). Several studies have focused on patient-reported outcomes of people with hemophilia (PWH) worldwide, but no such data are available for Portugal. This survey aimed to des...

Full description

Bibliographic Details
Main Authors: Patrícia Ribeiro Pinto, Ana Cristina Paredes, Susana Pedras, Patrício Costa, Miguel Crato, Susana Fernandes, Manuela Lopes, Manuela Carvalho, Armando Almeida
Format: Article
Language:English
Published: Georg Thieme Verlag KG 2018-01-01
Series:TH Open
Subjects:
hemophilia
pain
quality of life
functionality
psychological factors
Online Access:http://www.thieme-connect.de/DOI/DOI?10.1055/s-0038-1624568

Internet

http://www.thieme-connect.de/DOI/DOI?10.1055/s-0038-1624568

Similar Items