Epidermolysis bullosa House Austria as a role model for the care of a rare disease

The evolution of the Epidermolysis bullosa (EB) House Austria in Salzburg has demonstrated from its beginning in 2005 in an exceptional way the establishment of an optimized health care for a hitherto neglected group of patients, suffering from a rare but devastating skin disease: Epidermolysis bull...

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Bibliographic Details
Main Authors: C. M. Prodinger, M. Laimer, J. Bauer, H. Hintner
Format: Article
Language:Russian
Published: MONIKI 2019-02-01
Series:Alʹmanah Kliničeskoj Mediciny
Subjects:
Online Access:https://www.almclinmed.ru/jour/article/view/978