What information and the extent of information research participants need in informed consent forms: a multi-country survey

Abstract Background The use of lengthy, detailed, and complex informed consent forms (ICFs) is of paramount concern in biomedical research as it may not truly promote the rights and interests of research participants. The extent of information in ICFs has been the subject of debates for decades; how...

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Main Authors: Juntra Karbwang, Nut Koonrungsesomboon, Cristina E. Torres, Edlyn B. Jimenez, Gurpreet Kaur, Roli Mathur, Eti N. Sholikhah, Chandanie Wanigatunge, Chih-Shung Wong, Kwanchanok Yimtae, Murnilina Abdul Malek, Liyana Ahamad Fouzi, Aisyah Ali, Beng Z. Chan, Madawa Chandratilake, Shoen C. Chiew, Melvyn Y. C. Chin, Manori Gamage, Irene Gitek, Mohammad Hakimi, Narwani Hussin, Mohd F. A. Jamil, Pavithra Janarsan, Madarina Julia, Suman Kanungo, Panduka Karunanayake, Sattian Kollanthavelu, Kian K. Kong, Bing-Ling Kueh, Ragini Kulkarni, Paul P. Kumaran, Ranjith Kumarasiri, Wei H. Lim, Xin J. Lim, Fatihah Mahmud, Jacinto B. V. Mantaring, Siti M. Md Ali, Nurain Mohd Noor, Kopalasuntharam Muhunthan, Elanngovan Nagandran, Maisarah Noor, Kim H. Ooi, Jebananthy A. Pradeepan, Ahmad H. Sadewa, Nilakshi Samaranayake, Shalini Sri Ranganathan, Wasanthi Subasingha, Sivasangari Subramaniam, Nadirah Sulaiman, Ju F. Tay, Leh H. Teng, Mei M. Tew, Thipaporn Tharavanij, Peter S. K. Tok, Jayanie Weeratna, Tri Wibawa, Renu Wickremasinghe, Phanthipha Wongwai, Subhash Yadav, FERCAP Multi-Country Research Team
Format: Article
Language:English
Published: BMC 2018-09-01
Series:BMC Medical Ethics
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12910-018-0318-x