Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex – Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy

Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex – Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy

Tuberous sclerosis complex (TSC) is a rare genetic disease associated with significant disease burden and considerable impact on health-related quality of life (HRQL). Currently no disease-specific clinical outcome assessments evaluate HRQL in individuals with TSC. A multi-center phase III study EXI...

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Bibliographic Details
Main Authors: Petrus J. de Vries, David N. Franz, Paolo Curatolo, Rima Nabbout, Maureen Neary, Fabian Herbst, Kate Sully, Elaine Brohan, Bryan Bennett, John A. Lawson
Format: Article
Language:English
Published: Frontiers Media S.A. 2018-08-01
Series:Frontiers in Pharmacology
Subjects:
tuberous sclerosis complex
refractory epilepsy
health related quality of life
psychometric properties
QOLCE
QOLIE-AD-48
Online Access:https://www.frontiersin.org/article/10.3389/fphar.2018.00964/full

Internet

https://www.frontiersin.org/article/10.3389/fphar.2018.00964/full

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