Ethics and Family Resilience for Integral Care in the field of Rare Diseases

In contemporary societies, children and young people with rare diseases have disability barriers and social exclusion. How to build an ethical, resilient and empowered character in their families that allows them to improve their quality of life? To answer this question, INèDITHOS, a project of Hosp...

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Bibliographic Details
Main Author: Martín García Parra
Format: Article
Language:Spanish
Published: Asociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y Discapacidad 2019-12-01
Series:INFAD
Subjects:
Online Access:http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/1696