Diagnosing Juvenile Huntington’s Disease: An Explorative Study among Caregivers of Affected Children

Diagnosing Juvenile Huntington’s Disease: An Explorative Study among Caregivers of Affected Children

<i>Objective:</i> To investigate the reasons for the diagnostic delay of juvenile Huntington&#8217;s disease patients in the Netherlands.<b> </b><i>Methods</i>: This study uses interpretative phenomenological analysis. Eligible participants were parents and ca...

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Bibliographic Details
Main Authors: Mayke Oosterloo, Emilia K. Bijlsma, Christine de Die-Smulders, Raymund A.C. Roos
Format: Article
Language:English
Published: MDPI AG 2020-03-01
Series:Brain Sciences
Subjects:
juvenile huntington’s disease
pediatric huntington’s disease
early-onset huntington’s disease
personal experiences
caregivers
Online Access:https://www.mdpi.com/2076-3425/10/3/155

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https://www.mdpi.com/2076-3425/10/3/155

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