The Value of Cognitive Pretesting: Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey

The Value of Cognitive Pretesting: Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey

Surveys are used to gather a range of data on newborn screening (NBS) processes. We describe the development of a survey about parents’ NBS experiences, in the United States, informed by cognitive pretest interviews among parents with varying NBS test results (true-positive, false-positive, normal)....

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Bibliographic Details
Main Authors: Norma-Jean Simon, Anne Atkins, Brianne Miller, Natasha Bonhomme, Beth Tarini
Format: Article
Language:English
Published: MDPI AG 2021-07-01
Series:International Journal of Neonatal Screening
Subjects:
newborn screening
survey development
cognitive interviews
Online Access:https://www.mdpi.com/2409-515X/7/3/41

Internet

https://www.mdpi.com/2409-515X/7/3/41

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