Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network

Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network

In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with the creation of a recommendation to ensure ethic...

Full description

Bibliographic Details
Main Authors: Alessandro Blasimme, Caroline Brall, Effy Vayena
Format: Article
Language:English
Published: Frontiers Media S.A. 2020-12-01
Series:Frontiers in Genetics
Subjects:
reporting
genetic research findings
return of results
ethical recommendations
expert stakeholder consultation
Switzerland
Online Access:https://www.frontiersin.org/articles/10.3389/fgene.2020.585820/full

Internet

https://www.frontiersin.org/articles/10.3389/fgene.2020.585820/full

Similar Items