Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Abstract Background Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to all, however, are difficulties regarding in...

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Bibliographic Details
Main Authors: Svenja Litzkendorf, Martin Frank, Ana Babac, Daniel Rosenfeldt, Franziska Schauer, Tobias Hartz, J.-Matthias Graf von der Schulenburg
Format: Article
Language:English
Published: BMC 2020-06-01
Series:BMC Public Health
Subjects:
Rare diseases
Information sources
Informants
Health information seeking
Qualitative research
Content analysis
Online Access:http://link.springer.com/article/10.1186/s12889-020-08926-9

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http://link.springer.com/article/10.1186/s12889-020-08926-9

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