Validation of diagnostic codes and epidemiologic trends of Huntington disease: a population-based study in Navarre, Spain
Abstract Background There is great heterogeneity on geographic and temporary Huntington disease (HD) epidemiological estimates. Most research studies of rare diseases, including HD, use health information systems (HIS) as data sources. This study investigates the validity and accuracy of national an...
Main Authors: | , , , , , |
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Format: | Article |
Language: | English |
Published: |
BMC
2021-02-01
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Series: | Orphanet Journal of Rare Diseases |
Subjects: | |
Online Access: | https://doi.org/10.1186/s13023-021-01699-3 |