Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Fragile X Syndrome (FXS) is the most common x-linked monogenic cause of Intellectual Disability (ID) and Autism Spectrum Disorder (ASD). Taking care of children with ID is challenging and overwhelming due to the multiple facets of caregiving. This scoping review aimed at summarizing the qualitative...

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Bibliographic Details
Main Authors: Karen Kengne Kamga, Jantina De Vries, Seraphin Nguefack, Syntia Nchangwi Munung, Ambroise Wonkam
Format: Article
Language:English
Published: Frontiers Media S.A. 2020-02-01
Series:Frontiers in Neurology
Subjects:
fragile X syndrome
lived experience
care givers
scoping review
qualitative research
Online Access:https://www.frontiersin.org/article/10.3389/fneur.2020.00128/full

Internet

https://www.frontiersin.org/article/10.3389/fneur.2020.00128/full

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