Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

Abstract Background As biobanks play an increasing role in the genomic research that will lead to precision medicine, input from diverse and large populations of patients in a variety of health care settings will be important in order to successfully carry out such studies. One important topic is pa...

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Bibliographic Details
Main Authors: Maureen E. Smith, Saskia C. Sanderson, Kyle B. Brothers, Melanie F. Myers, Jennifer McCormick, Sharon Aufox, Martha J. Shrubsole, Nanibaá A. Garrison, Nathaniel D. Mercaldo, Jonathan S. Schildcrout, Ellen Wright Clayton, Armand H. Matheny Antommaria, Melissa Basford, Murray Brilliant, John J. Connolly, Stephanie M. Fullerton, Carol R. Horowitz, Gail P. Jarvik, Dave Kaufman, Terri Kitchner, Rongling Li, Evette J. Ludman, Catherine McCarty, Valerie McManus, Sarah Stallings, Janet L. Williams, Ingrid A. Holm
Format: Article
Language:English
Published: BMC 2016-11-01
Series:BMC Medical Research Methodology
Subjects:
Survey
Consent
Multi-site
Genomics
Institutional Review Board
Cognitive interviews
Online Access:http://link.springer.com/article/10.1186/s12874-016-0263-7

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http://link.springer.com/article/10.1186/s12874-016-0263-7

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