Economic burden and health related quality of life of ultra-rare Gaucher disease in China

Economic burden and health related quality of life of ultra-rare Gaucher disease in China

Abstract Background The diagnosis and health care of patients with rare diseases present a tremendous challenge worldwide. This study described the health care service utilization through participants’ perspective and estimated the cost of illness (COI), and patients with Gaucher disease (GD)’s/care...

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Bibliographic Details
Main Authors: Xinye Qi, Jiao Xu, Linghan Shan, Ye Li, Yu Cui, Huan Liu, Kexin Wang, Lijun Gao, Zheng Kang, Qunhong Wu
Format: Article
Language:English
Published: BMC 2021-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Gaucher disease
Health service utilization
Cost of illness
Health status
Caregiver
Diagnoses
Online Access:https://doi.org/10.1186/s13023-021-01963-6

Internet

https://doi.org/10.1186/s13023-021-01963-6

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