Clinical genetics and public policies: how should rare diseases be managed?

The implementation of a specific policy for rare diseases in the Brazilian Unified Health System presents challenges in terms of its rationale. Recognizing the importance of rarity in the context of public health means understanding genetics as one of the dimensions of disease and accepting thatBraz...

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Bibliographic Details
Main Authors: Ida Schwartz, Monica Souza, Paulo Leivas, Lavinia Schuler-Faccini
Format: Article
Language:English
Published: Hospital de Clinicas de Porto Alegre ; Universidade Federal do Rio Grande do Sul (UFRGS) 2014-07-01
Series:Clinical and Biomedical Research
Subjects:
Online Access:http://seer.ufrgs.br/index.php/hcpa/article/view/47988