A telehealth approach to improving clinical trial access for infants with tuberous sclerosis complex

Abstract Background Research in rare genetic syndromes associated with ASD is often hampered by the wide geographic distribution of families and the presence of medical comorbidities, such as epilepsy, that may preclude travel to clinical sites. These challenges can limit the sample size and general...

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Bibliographic Details
Main Authors: Carly Hyde, Maria Pizzano, Nicole M. McDonald, Charles A. Nelson, Connie Kasari, Elizabeth A. Thiele, Shafali S. Jeste
Format: Article
Language:English
Published: BMC 2020-01-01
Series:Journal of Neurodevelopmental Disorders
Subjects:
Online Access:https://doi.org/10.1186/s11689-019-9302-0