Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

Abstract Background Tuberous sclerosis complex (TSC) is a rare genetic disorder characterized by benign tumors in multiple organs, including non-cancerous kidney lesions known as renal angiomyolipomas. This study’s objective is to describe the age-stratified morbidity, treatment patterns, and health...

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Bibliographic Details
Main Authors: Anne M. Rentz, Anne M. Skalicky, Zhimei Liu, David W. Dunn, Michael D. Frost, Jo Anne Nakagawa, Judith Prestifilippo, Qayyim Said, James W. Wheless
Format: Article
Language:English
Published: SpringerOpen 2018-07-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Health care utilization
Health-related quality of life
Renal angiomyolipomas
Tuberous sclerosis complex (TSC)
Online Access:http://link.springer.com/article/10.1186/s41687-018-0055-4

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http://link.springer.com/article/10.1186/s41687-018-0055-4

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