Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward sharing with health professionals and researchers. These requests ra...

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Bibliographic Details
Main Authors: Michael J. S. Beauvais, Adrian M. Thorogood, Michael J. Szego, Karine Sénécal, Ma'n H. Zawati, Bartha Maria Knoppers
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-03-01
Series:Frontiers in Genetics
Subjects:
whole genome sequencing
personal genomics
pediatrics
privacy
individual access
ethics
Online Access:https://www.frontiersin.org/articles/10.3389/fgene.2021.535340/full

Internet

https://www.frontiersin.org/articles/10.3389/fgene.2021.535340/full

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