Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

Abstract Background Genomic and biosocial research data about individuals is rapidly proliferating, bringing the potential for novel opportunities for data integration and use. The scale, pace and novelty of these applications raise a number of urgent sociotechnical, ethical and legal questions, inc...

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Bibliographic Details
Main Authors: Madeleine J. Murtagh, Mwenza T. Blell, Olly W. Butters, Lorraine Cowley, Edward S. Dove, Alissa Goodman, Rebecca L. Griggs, Alison Hall, Nina Hallowell, Meena Kumari, Massimo Mangino, Barbara Maughan, Melinda C. Mills, Joel T. Minion, Tom Murphy, Gillian Prior, Matthew Suderman, Susan M. Ring, Nina T. Rogers, Stephanie J. Roberts, Catherine Van der Straeten, Will Viney, Deborah Wiltshire, Andrew Wong, Neil Walker, Paul R. Burton
Format: Article
Language:English
Published: BMC 2018-04-01
Series:Human Genomics
Subjects:
Data ethics
Data governance
Data access
Data Access Committee (DAC)
Governance
Participant involvement
Online Access:http://link.springer.com/article/10.1186/s40246-018-0154-6

Internet

http://link.springer.com/article/10.1186/s40246-018-0154-6

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