Assessing the Needs of the SMA Population

To define issues of greatest importance to families and health care professionals (HCP) involved in caring for patients with spinal muscular atrophy (SMA), an electronic survey was distributed to patients, families, and HCPs to determine the most important issues facing patients with SMA. Seventy-se...

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Bibliographic Details
Main Authors: Matthew A. Halanski, Karen G. Patterson, Sarah A. Sund, Linda M. Makholm, Mary K. Schroth
Format: Article
Language:English
Published: SAGE Publishing 2014-11-01
Series:SAGE Open
Online Access:https://doi.org/10.1177/2158244014559018