Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

Abstract Background Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care planning (ACP). To improve ACP for HD patients, there is a need to better...

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Bibliographic Details
Main Authors: Marina R. Ekkel, Marja F. I. A. Depla, Els M. L. Verschuur, Ruth B. Veenhuizen, Cees M. P. M. Hertogh, Bregje D. Onwuteaka-Philipsen
Format: Article
Language:English
Published: BMC 2021-01-01
Series:BMC Palliative Care
Subjects:
Advance care planning
Huntington’s disease
Qualitative research
Neurodegenerative disease
Patients’ perspectives
Online Access:https://doi.org/10.1186/s12904-020-00706-x

Internet

https://doi.org/10.1186/s12904-020-00706-x

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