Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study

Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study

Abstract Background In the last ten years, national rare disease networks have been established in France, including national centres of expertise and regional ones, with storage of patient data in a bioinformatics tool. The aim was to contribute to the development and evaluation of health strategie...

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Bibliographic Details
Main Authors: Lisa Friedlander, Rémy Choquet, Eva Galliani, Myriam de Chalendar, Claude Messiaen, Amélie Ruel, Marie-Paule Vazquez, Ariane Berdal, Corinne Alberti, Muriel De La Dure Molla
Format: Article
Language:English
Published: BMC 2017-05-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Registry
Epidemiology
Orofacial diseases
Oral cleft
Online Access:http://link.springer.com/article/10.1186/s13023-017-0650-0

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http://link.springer.com/article/10.1186/s13023-017-0650-0

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