The humanistic burden of Pompe disease: are there still unmet needs? A systematic review

The humanistic burden of Pompe disease: are there still unmet needs? A systematic review

Abstract Background Humanistic burden considers the impact of an illness on a patient’s health-related quality of life (HRQoL), activities of daily living (ADL), caregiver health, and caregiver QoL. Humanistic burden also considers treatment satisfaction and adherence to treatment regimens. Pompe di...

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Bibliographic Details
Main Authors: Benedikt Schoser, Deborah A. Bilder, David Dimmock, Digant Gupta, Emma S. James, Suyash Prasad
Format: Article
Language:English
Published: BMC 2017-11-01
Series:BMC Neurology
Subjects:
Pompe
Humanistic burden
Quality of life
Daily living
Caregiver burden
Online Access:http://link.springer.com/article/10.1186/s12883-017-0983-2

Internet

http://link.springer.com/article/10.1186/s12883-017-0983-2

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