Rare genital malformations in women’s health research: sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-Küster-Hauser syndrome

Rare genital malformations in women’s health research: sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-Küster-Hauser syndrome

Abstract Background The Mayer-Rokitansky-Küster-Hauser syndrome, MRKHS, is a rare (orphan) disease characterized by the aplasia or hypoplasia of the uterus and the vagina. In women's health research, little is known as to how much care provision for patients with MRKHS takes into account their...

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Bibliographic Details
Main Authors: Sara Yvonne Brucker, Leonie-Sophia Pösch, Joachim Graf, Alexander N. Sokolov, Norbert Schaeffeler, Andrea Kronenthaler, Hanna Hiltner, Anke Wagner, Esther Ueding, Monika A. Rieger, Dorit Schöller, Diana Stefanescu, Kristin Katharina Rall, Diethelm Wallwiener, Elisabeth Simoes
Format: Article
Language:English
Published: BMC 2020-06-01
Series:BMC Women's Health
Subjects:
Mayer-Rokitansky-Küster-Hauser syndrome MRKHS
Rare disease
Primary amenorrhea
Transition care
Health care research
Socio-demographics
Online Access:http://link.springer.com/article/10.1186/s12905-020-00969-9

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http://link.springer.com/article/10.1186/s12905-020-00969-9

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