Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

Abstract Background While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. Methods Participants who received genetic research results answered open and closed‐ended que...

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Bibliographic Details
Main Authors: Jill B. Gaieski, Linda Patrick‐Miller, Brian L. Egleston, Kara N. Maxwell, Sarah Walser, Laura DiGiovanni, Jamie Brower, Dominique Fetzer, Amanda Ganzak, Danielle McKenna, Jessica M. Long, Jacquelyn Powers, Jill E. Stopfer, Katherine L. Nathanson, Susan M. Domchek, Angela R. Bradbury
Format: Article
Language:English
Published: Wiley 2019-09-01
Series:Molecular Genetics & Genomic Medicine
Subjects:
genetic counseling
genetic testing
preferences for return of genetic research results
return of genetic research results
web‐based alternatives to genetic counseling
Online Access:https://doi.org/10.1002/mgg3.898

Internet

https://doi.org/10.1002/mgg3.898

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