The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital

The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital

Abstract Ehlers-Danlos Syndrome (EDS) are a heterogeneous group of genetic connective tissue disorders, and typically manifests as weak joints that subluxate/dislocate, stretchy and/or fragile skin, organ/systems dysfunction, and significant widespread pain. Historically, this syndrome has been poor...

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Bibliographic Details
Main Authors: Nimish Mittal, Daniel Santa Mina, Laura McGillis, Aliza Weinrib, P. Maxwell Slepian, Maxim Rachinsky, Stephanie Buryk-Iggers, Camille Laflamme, Laura Lopez-Hernandez, Laura Hussey, Joel Katz, Lianne McLean, Dmitry Rozenberg, Louis Liu, Yvonne Tse, Colleen Parker, Arnon Adler, George Charames, Robert Bleakney, Christian Veillette, Christopher J. Nielson, Sandra Tavares, Stephanie Varriano, Juan Guzman, Hanna Faghfoury, Hance Clarke
Format: Article
Language:English
Published: BMC 2021-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Ehlers Danlos Syndrome
Hypermobility spectrum disorders
Connective tissue disorders
Diagnosis and treatment
Online Access:https://doi.org/10.1186/s13023-021-01962-7

Internet

https://doi.org/10.1186/s13023-021-01962-7

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