Patient-recorded outcome to assess therapeutic efficacy in protoporphyria-induced dermal phototoxicity: a proposal

<p>Abstract</p> <p>Background</p> <p>Protoporphyria (PP) resulting from two rare, inherited diseases of heme biosynthesis leads to dermal phototoxicity by accumulation of the heme precursor protoporphyrin IX. No standardized tools to quantify the degree of PP-related ph...

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Bibliographic Details
Main Authors: Minder Christoph E, Schneider-Yin Xiaoye, Minder Elisabeth I
Format: Article
Language:English
Published: BMC 2010-06-01
Series:Health and Quality of Life Outcomes
Online Access:http://www.hqlo.com/content/8/1/60