Self-efficacy and self-management strategies in acute intermittent porphyria

Self-efficacy and self-management strategies in acute intermittent porphyria

Abstract Background Acute intermittent porphyria (AIP) is an inherited metabolic disease with low clinical penetrance caused by mutations in the hydroxymethylbilane (HMBS) gene. Although most patients experience little or no symptoms, serious attacks may include excruciating pain, severe electrolyte...

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Bibliographic Details
Main Authors: Marte H. Hammersland, Aasne K. Aarsand, Sverre Sandberg, Janice Andersen
Format: Article
Language:English
Published: BMC 2019-07-01
Series:BMC Health Services Research
Subjects:
Acute intermittent porphyria
Predictive genetic testing
Genetic counseling
Satisfaction with genetic counseling scale
Self-efficacy
General self-efficacy scale
Online Access:http://link.springer.com/article/10.1186/s12913-019-4285-9

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http://link.springer.com/article/10.1186/s12913-019-4285-9

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