Patient and physician discordance of global disease assessment in juvenile dermatomyositis: findings from the Childhood Arthritis & Rheumatology Research Alliance Legacy Registry

Patient and physician discordance of global disease assessment in juvenile dermatomyositis: findings from the Childhood Arthritis & Rheumatology Research Alliance Legacy Registry

Abstract Background Global disease activity scores (gVAS) capture patient or family (PF) and physician (MD) assessments of disease. This study sought to measure discordance between PF and MD global activity scores in juvenile dermatomyositis (JDM), and determine factors associated with discordance....

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Bibliographic Details
Main Authors: Heather Tory, David Zurakowski, Susan Kim, the CARRA Juvenile Dermatomyositis Quality Measures Workgroup for the CARRA Registry Investigators
Format: Article
Language:English
Published: BMC 2020-01-01
Series:Pediatric Rheumatology Online Journal
Subjects:
Patient reported outcome measures
Juvenile Dermatomyositis
Quality of life
Physician perspective
Patient perspective
Online Access:https://doi.org/10.1186/s12969-020-0402-x

Internet

https://doi.org/10.1186/s12969-020-0402-x

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