The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Efforts

The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Efforts

The goal of newborn screening is to improve health outcomes by identifying and treating affected newborns. This manuscript provides an overview of a data tool to facilitate the longitudinal collection of health information on newborns diagnosed with a condition through NBS. The Newborn Screening Tra...

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Bibliographic Details
Main Authors: Amy Brower, Kee Chan, Michael Hartnett, Jennifer Taylor
Format: Article
Language:English
Published: MDPI AG 2021-06-01
Series:International Journal of Neonatal Screening
Subjects:
newborn screening
research
long-term follow-up
NBSTRN
LPDR
RUSP
Online Access:https://www.mdpi.com/2409-515X/7/3/37

Internet

https://www.mdpi.com/2409-515X/7/3/37

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