Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

Abstract Background Many children with serious illnesses are receiving palliative and end-of-life care from pediatric palliative and hospice care teams at home (PPHC@Home). Despite the growth in PPHC@Home, no standardized measures exist to evaluate whether PPHC@Home provided in the U.S. meets the ne...

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Bibliographic Details
Main Authors: Jackelyn Y. Boyden, Chris Feudtner, Janet A. Deatrick, Kimberley Widger, Gwenn LaRagione, Blyth Lord, Mary Ersek
Format: Article
Language:English
Published: BMC 2021-01-01
Series:BMC Palliative Care
Subjects:
Pediatric palliative care
Pediatric hospice care
Home-based care
Experience with care
Instrument development
Online Access:https://doi.org/10.1186/s12904-020-00703-0

Internet

https://doi.org/10.1186/s12904-020-00703-0

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