National platform for Rare Diseases Data Registry of Japan

National platform for Rare Diseases Data Registry of Japan

Abstract Introduction In Japan, there are approximately 300 projects conducting research on rare diseases supported by the Ministry of Health, Labour and Welfare of Japan (MHLW) and the Japan Agency for Medical Research and Development (AMED). Diverse data, including clinical, genomic, and sample‐re...

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Bibliographic Details
Main Authors: Yoshihiko Furusawa, Izumi Yamaguchi, Naoko Yagishita, Kazumasa Tanzawa, Fumihiko Matsuda, Yoshihisa Yamano, RADDAR‐J Research and Development Group
Format: Article
Language:English
Published: Wiley 2019-07-01
Series:Learning Health Systems
Subjects:
clinical information
data integration platform
data sharing
genomic information
rare disease
registry
Online Access:https://doi.org/10.1002/lrh2.10080

Internet

https://doi.org/10.1002/lrh2.10080

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