A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities

A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities

Abstract Background To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. Methods We surveyed investigators from North America, Europe, and Australia a...

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Bibliographic Details
Main Authors: Timothy Beukelman, Janneke Anink, Lillemor Berntson, Ciaran Duffy, Justine A. Ellis, Mia Glerup, Jaime Guzman, Gerd Horneff, Lianne Kearsley-Fleet, Ariane Klein, Jens Klotsche, Bo Magnusson, Kirsten Minden, Jane E. Munro, Martina Niewerth, Ellen Nordal, Nicolino Ruperto, Maria Jose Santos, Laura E. Schanberg, Wendy Thomson, Lisette van Suijlekom-Smit, Nico Wulffraat, Kimme Hyrich
Format: Article
Language:English
Published: BMC 2017-04-01
Series:Pediatric Rheumatology Online Journal
Subjects:
Juvenile idiopathic arthritis
Registry
Observational study
Pharmacosurveillance
Pediatric rheumatology
Online Access:http://link.springer.com/article/10.1186/s12969-017-0161-5

Internet

http://link.springer.com/article/10.1186/s12969-017-0161-5

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