A nationwide survey of hospital-based thalassemia patients and standards of care and a preliminary assessment of the national prevention program in Sri Lanka.

<h4>Objectives</h4>Our aim was to describe the numbers and distribution of patients with different types of thalassemia and to assess the standards of care in all thalassemia treatment centers throughout Sri Lanka and the success of the ongoing prevention programme.<h4>Methods</...

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Main Authors: Anuja P Premawardhana, Rasnayaka Mudiyanse, Shamila T De Silva, Nilam Jiffry, Udaya Nelumdeniya, Udaya de Silva, Sanath P Lamabadusuriya, K Pushpakumara, Randima Dissanayaka, M Jansz, I Rifaya, Upul Navarathne, V Thirukumaran, Mahinda Arambepola, Wijesundara Dayanada Bandara, U Vaidyanatha, Devan Mendis, K Weerasekara, Nalika De Silva, D K Shantha Kumara, Sujeewa D Amarasena, K K Hemantha, M A C M Refai, Ishari Silva, Nizri Hameed, F Rajiyah, Sachith Mettananda, Angela Allen, David J Weatherall, Nancy F Oliveri
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2019-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0220852