“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland [version 2; referees: 2 approved]

Background: Use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public understanding about this work, have lagged behind. We aimed to systematically review the literat...

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Bibliographic Details
Main Authors: Jessica Stockdale, Jackie Cassell, Elizabeth Ford
Format: Article
Language:English
Published: Wellcome 2019-01-01
Series:Wellcome Open Research
Online Access:https://wellcomeopenresearch.org/articles/3-6/v2