Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

Abstract Background Citizen science is increasingly prevalent in the biomedical sciences, including the field of human genomics. Genomic citizen science initiatives present new opportunities to engage individuals in scientific discovery, but they also are provoking new questions regarding who owns t...

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Bibliographic Details
Main Authors: Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield, Amy L. McGuire
Format: Article
Language:English
Published: BMC 2019-11-01
Series:BMC Medical Ethics
Subjects:
Citizen science
Intellectual property
Return of results
Research ethics
Direct-to-consumer genetic testing
Online Access:http://link.springer.com/article/10.1186/s12910-019-0419-1

Internet

http://link.springer.com/article/10.1186/s12910-019-0419-1

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