Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

BackgroundUsing social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parents of children with specific congenital...

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Bibliographic Details
Main Authors: Sinclair, Marlene, McCullough, Julie EM, Elliott, David, Latos-Bielenska, Anna, Braz, Paula, Cavero-Carbonell, Clara, Jamry-Dziurla, Anna, João Santos, Ana, Páramo-Rodríguez, Lucía
Format: Article
Language:English
Published: JMIR Publications 2019-11-01
Series:Journal of Medical Internet Research
Online Access:http://www.jmir.org/2019/11/e15847/

Internet

http://www.jmir.org/2019/11/e15847/

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