Providing appropriate genetic information to healthy multi-ethnic carriers of hemoglobinopathy in The Netherlands
The aims of this study are: i) to enquire whether informing healthy hemoglobinopathy carriers about their condition is a welcome initiative in The Netherlands; ii) to study whether using information letters and thorough explanation is associated with presence or absence of undesired feelings or emot...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
PAGEPress Publications
2014-09-01
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| Series: | Thalassemia Reports |
| Subjects: | |
| Online Access: | http://www.pagepressjournals.org/index.php/thal/article/view/1822 |