Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Clinical data on primary ciliary dyskinesia (PCD) are limited, heterogeneous and mostly derived from retrospective chart reviews, leading to missing data and unreliable symptoms and results of physical examinations. We need standardised prospective data collection to study phenotypes, severity and p...

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Main Authors: Myrofora Goutaki, Jean-François Papon, Mieke Boon, Carmen Casaulta, Ernst Eber, Estelle Escudier, Florian S. Halbeisen, Amanda Harris, Claire Hogg, Isabelle Honore, Andreas Jung, Bulent Karadag, Cordula Koerner-Rettberg, Marie Legendre, Bernard Maitre, Kim G. Nielsen, Bruna Rubbo, Nisreen Rumman, Lynne Schofield, Amelia Shoemark, Guillaume Thouvenin, Hannah Willkins, Jane S. Lucas, Claudia E. Kuehni
Format: Article
Language:English
Published: European Respiratory Society 2020-02-01
Series:ERJ Open Research
Online Access:http://openres.ersjournals.com/content/6/1/00237-2019.full

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