Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic review in Cushing’s syndrome

Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic review in Cushing’s syndrome

Abstract Rare diseases are often not fully understood and efforts put in investigating it from patient perspective are usually met with challenges. We performed a systematic literature review (SLR) for the last 20 years in Cushing’s Syndrome (CS) to illustrate Patient-Reported Outcome (PRO) challeng...

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Bibliographic Details
Main Authors: Naomi Knoble, Gabrielle Nayroles, Cherry Cheng, Benoit Arnould
Format: Article
Language:English
Published: BMC 2018-12-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Quality of life
Patient-reported outcome
Literature review
Rare disease
Cushing’s syndrome
Online Access:http://link.springer.com/article/10.1186/s13023-018-0958-4

Internet

http://link.springer.com/article/10.1186/s13023-018-0958-4

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