Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey

Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey

Abstract Background Poland Syndrome (PS) is a rare congenital malformation involving functional and aesthetic impairments. Early diagnosis and timely therapeutic approaches play an important role in improving the quality of life of patients and kindred. This study aims to explore healthcare experien...

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Bibliographic Details
Main Authors: Ilaria Baldelli, Fabio Gallo, Marco Crimi, Piero Fregatti, Lorenzo Mellini, Pierluigi Santi, Rosagemma Ciliberti
Format: Article
Language:English
Published: BMC 2019-11-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Poland syndrome
Breast asymmetry
Chest malformation
Hand malformation
Congenital malformation
Rare disease
Online Access:http://link.springer.com/article/10.1186/s13023-019-1253-8

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http://link.springer.com/article/10.1186/s13023-019-1253-8

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