Using pre-existing social networks to determine the burden of disease and real-life needs in rare diseases: the example of Thygeson's superficial punctate keratitis

Using pre-existing social networks to determine the burden of disease and real-life needs in rare diseases: the example of Thygeson's superficial punctate keratitis

Abstract Background Thygeson’s superficial punctate keratitis (TSPK) is a rare and still poorly understood disease of the ocular surface, responsible for recurrent episodes of photophobia and eye pain. While TSPK is considered as a benign condition, a subset of patients has frequent recurrences or e...

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Bibliographic Details
Main Authors: Rana Saad, Sami Saad, Oscar Haigh, Domitille Molinari, Marc Labetoulle, Antoine Rousseau
Format: Article
Language:English
Published: BMC 2021-01-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Thygeson’s superficial punctate keratitis
Social network
Clinical journey
Quality of life
Burden of disease
Online Access:https://doi.org/10.1186/s13023-021-01707-6

Internet

https://doi.org/10.1186/s13023-021-01707-6

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