European Reference Network For Rare Vascular Diseases (VASCERN) Outcome Measures For Hereditary Haemorrhagic Telangiectasia (HHT)

European Reference Network For Rare Vascular Diseases (VASCERN) Outcome Measures For Hereditary Haemorrhagic Telangiectasia (HHT)

Abstract Hereditary haemorrhagic telangiectasia (HHT) is a multisystemic vascular dysplasia that leads to nosebleeds, anaemia due to blood loss, and arteriovenous malformations (AVMs) in organs such as the lungs, liver and brain. HHT is estimated to affect 85,000 European citizens, but most health c...

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Bibliographic Details
Main Authors: Claire L. Shovlin, Elisabetta Buscarini, Anette D. Kjeldsen, Hans Jurgen Mager, Carlo Sabba, Freya Droege, Urban Geisthoff, Sara Ugolini, Sophie Dupuis-Girod
Format: Article
Language:English
Published: BMC 2018-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Anaemia
Antibiotic prophylaxis
Epistaxis
Iron deficiency
Nosebleeds
Pulmonary arteriovenous malformations
Online Access:http://link.springer.com/article/10.1186/s13023-018-0850-2

Internet

http://link.springer.com/article/10.1186/s13023-018-0850-2

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