Responsible data sharing in a big data-driven translational research platform: lessons learned

Responsible data sharing in a big data-driven translational research platform: lessons learned

Abstract Background To foster responsible data sharing in health research, ethical governance complementary to the EU General Data Protection Regulation is necessary. A governance framework for Big Data-driven research platforms will at least need to consider the conditions as specified a priori for...

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Bibliographic Details
Main Authors: S. Kalkman, M. Mostert, N. Udo-Beauvisage, J. J. van Delden, G. J. van Thiel
Format: Article
Language:English
Published: BMC 2019-12-01
Series:BMC Medical Informatics and Decision Making
Subjects:
Big data
Data sharing
Data access
Governance
Ethics
Online Access:https://doi.org/10.1186/s12911-019-1001-y

Internet

https://doi.org/10.1186/s12911-019-1001-y

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