Federating patients identities: the case of rare diseases

Federating patients identities: the case of rare diseases

Abstract Background Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while...

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Bibliographic Details
Main Authors: Meriem Maaroufi, Paul Landais, Claude Messiaen, Marie-Christine Jaulent, Rémy Choquet
Format: Article
Language:English
Published: BMC 2018-11-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Health information exchange
Patient identification systems
Identity federation
Patient data privacy
Online Access:http://link.springer.com/article/10.1186/s13023-018-0948-6

Internet

http://link.springer.com/article/10.1186/s13023-018-0948-6

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