Information needs of physicians regarding the diagnosis of rare diseases: a questionnaire-based study in Belgium

Information needs of physicians regarding the diagnosis of rare diseases: a questionnaire-based study in Belgium

Abstract Background Late and misdiagnoses of rare disease patients are common and often result in medical, physical and mental burden for the patient, and financial and emotional burden for the patient’s family. Low rare disease awareness among physicians is believed to be one of the reasons for the...

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Bibliographic Details
Main Authors: Liese Vandeborne, Eline van Overbeeke, Marc Dooms, Birgit De Beleyr, Isabelle Huys
Format: Article
Language:English
Published: BMC 2019-05-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Information needs
Physicians
Orphanet
Diagnosis
Red flags
Online Access:http://link.springer.com/article/10.1186/s13023-019-1075-8

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http://link.springer.com/article/10.1186/s13023-019-1075-8

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