Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey

Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey

Abstract Background Hereditary angioedema (HAE) is a rare, debilitating, genetic disease characterized by unpredictable, recurrent, and potentially fatal swelling of the skin and mucous membranes. We conducted a noninterventional, cross-sectional, web-based survey of patients with a self-reported di...

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Bibliographic Details
Main Authors: Joan Mendivil, Ryan Murphy, Marie de la Cruz, Ellen Janssen, Henrik Balle Boysen, Gagan Jain, Emel Aygören-Pürsün, Ishan Hirji, Giovanna Devercelli
Format: Article
Language:English
Published: BMC 2021-02-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Hereditary angioedema
Burden of illness
Quality of life
Long-term prophylaxis
Surveys and questionnaires
Cross-sectional studies
Online Access:https://doi.org/10.1186/s13023-021-01717-4

Internet

https://doi.org/10.1186/s13023-021-01717-4

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