Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©)

Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©)

Karen Kaiser,1 Susan E Yount,1 Christa E Martens,1 Kimberly A Webster,1 Sara Shaunfield,1 Amy Sparling,1 John Devin Peipert,1 David Cella,1 Scott T Rottinghaus,2 Bonnie MK Donato,2 Richard Wells,3 Ioannis Tomazos2 1Department of Medical Social Sciences, Northwestern University Feinberg School of Med...

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Bibliographic Details
Main Authors: Kaiser K, Yount SE, Martens CE, Webster KA, Shaunfield S, Sparling A, Peipert JD, Cella D, Rottinghaus ST, Donato BMK, Wells R, Tomazos I
Format: Article
Language:English
Published: Dove Medical Press 2020-04-01
Series:Patient Preference and Adherence
Subjects:
paroxysmal nocturnal hemoglobinuria
questionnaire development
ravulizumab
eculizumab
treatment experience
Online Access:https://www.dovepress.com/assessing-preferences-for-rare-disease-treatment-qualitative-developme-peer-reviewed-article-PPA

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https://www.dovepress.com/assessing-preferences-for-rare-disease-treatment-qualitative-developme-peer-reviewed-article-PPA

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