Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

Abstract Background The collection of routine clinical data in the setting of research registries can serve an important role in understanding real world care. However, relatively little is known about the patient experience in registries, motivating us to survey patients enrolled in two chronic dis...

Full description

Bibliographic Details
Main Authors: Daniel H. Solomon, Nancy A. Shadick, Michael E. Weinblatt, Michelle Frits, Christine Iannaccone, Agnes Zak, Joshua R. Korzenik
Format: Article
Language:English
Published: BMC 2017-04-01
Series:BMC Medical Research Methodology
Subjects:
Rheumatoid arthritis
Inflammatory bowel disease
Patient survey
Patient registry
Online Access:http://link.springer.com/article/10.1186/s12874-017-0343-3

Internet

http://link.springer.com/article/10.1186/s12874-017-0343-3

Similar Items