Deriving Vignettes for the Rare Disease AADC Deficiency Using Parent, Caregiver and Clinician Interviews to Evaluate the Impact on Health-Related Quality of Life

Deriving Vignettes for the Rare Disease AADC Deficiency Using Parent, Caregiver and Clinician Interviews to Evaluate the Impact on Health-Related Quality of Life

Andria Hanbury,1 Adam B Smith,1 Katharina Buesch2 1York Health Economics Consortium, University of York, York YO10 5NQ, UK; 2PTC Therapeutics, Zug 6300, SwitzerlandCorrespondence: Adam B SmithYork Health Economics Consortium, Enterprise House, Innovation Way, University of York, York YO10 5NQ, UKTel...

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Bibliographic Details
Main Authors: Hanbury A, Smith AB, Buesch K
Format: Article
Language:English
Published: Dove Medical Press 2021-01-01
Series:Patient Related Outcome Measures
Subjects:
aromatic l-amino acid decarboxylase (aadc) deficiency
vignettes
caregivers
clinicians
Online Access:https://www.dovepress.com/deriving-vignettes-for-the-rare-disease-aadc-deficiency-using-parent-c-peer-reviewed-article-PROM

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https://www.dovepress.com/deriving-vignettes-for-the-rare-disease-aadc-deficiency-using-parent-c-peer-reviewed-article-PROM

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